Three years ago I was an active 21-year-old living my dreams in London. I socialised often, finished many good bottles of wine, and told myself it was all balanced out because I cycled 10 miles a day. I had a few joint pains, my should dislocate sometimes, but life was good. Only months later, a significant and unrelenting decline in my health began that has continued to present day.
In December 2016, I was told that I needed to start using a wheelchair. My life has changed so dramatically its unrecognisable at times. During the decline, I was diagnosed with Ehlers-Danlos Syndrome Hypermobile type (hEDS) and a handful of other associated conditions. Every aspect of my life has changed since; I’ve had to give up work, my bike is a dusty fossil and socialising is something that must be planned with military precision (and could always get cancelled at the last minute if I’m having a flare).
This time has been trying for me, but made bearable by the support of my family and friends. I started this blog in the hopes of raising awareness about disabilities, and the impact it can have on people’s lives, in open and honest way. But also as a way of reach out and be a support for people who are going through similar things. If you, or someone you care for, are affected by disability, I would love to hear from you!